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FOR CANADIAN RESIDENTS ONLY

RESOURCES

Muscular Dystrophy Canada

A non-profit organization that provides resources and support for people living with muscular dystrophy.

Learn more

YouTube channel

Muscular Dystrophy Canada hosts its own YouTube channel on muscular dystrophy.

View the channel

Contact details

Local service specialists are available in each province and territory across Canada.

To connect with a service specialist near you, please contact:

Josée Bray

josee.bray@muscle.ca
1-800-366-8166 Ext. 1201

Canadian Association of Pompe

A non-profit society that helps create awareness of Pompe disease and supports people living with Pompe.

Learn more

YouTube channel

The Canadian Association of Pompe hosts its own YouTube channel on Pompe disease.

View the channel

Here are some videos from their channel:

Timely diagnosis and treatment

Julie – Pompe disease, knowing is half the battle

Pompe Disease – Diagnosis is a Simple Blood Test

Contact details

Brad Crittenden, Executive Director

Canadian Association of Pompe

Association canadienne de Pompe

brad@pompecanada.com

250-488-2571

Research organizations

Canadian Neuromuscular Diseases Network (CANNMD)

A network of all interested stakeholders across neuromuscular disease. This network contributes to the delivery of clinical care and scientific research for these diseases, and provides education and training for neuromuscular and rare diseases.

Learn more

Canadian Neuromuscular Disease Registry

A nation-wide registry of people living with a neuromuscular disease. The information collected in this registry is used to improve the understanding of neuromuscular disease, facilitate research and promote the development of therapies.

Learn more

* Fictitious patient.

Health information contained herein is provided for general educational purposes only. Your healthcare professional is the single best source of information regarding your health. Please consult your healthcare professional if you have any questions about your health or treatment.